Patients receiving mixed levels of IBD care, latest UK audit results show

Patients are experiencing differences in the quality of care and treatment they receive for Ulcerative Colitis (UC) according to the latest results from the UK Inflammatory Bowel Disease (IBD) audit.

The audit is commissioned by the Healthcare Quality Improvement Partnership (HQIP) as part of the National Clinical Audit and Patient Outcomes Programme (NCAPOP). The UK IBD audit is carried out by the Royal College of Physicians. The national reports measure inpatient care and inpatient experience for adult and paediatric patients with IBD.

Substantive improvements have been made in IBD care since the previous round of the audit. The rate of mortality has decreased from 1.5% to 0.75%. More adult patients (74%) are being prescribed bone protection medication for the prevention of osteoporosis  (a side effect of managing the illness with steroids). Preventative anticoagulants are given to 90% of adult patients (an increase from 70%) with only 1% of clotting complications. Colitis activity in paediatric patients is now recorded in hospital much more closely and Clostridium difficile (C diff) testing was recorded in 66% of paediatric patients (an increase from 36%).

Early intervention in IBD can help prevent symptoms becoming worse. The report makes recommendations for healthcare professionals caring for both adult and paediatric patients with IBD, including:

  • Patients should receive an accurate assessment of disease activity and treatment should be given to people with active disease.
  • All patients admitted to hospital should have their nutritional needs assessed either by a dietician or using a nutritional screening tool.
  • Anaemia, which is common among IBD patients should be actively investigated and treated with appropriate iron therapy.

Data from the audit suggests some admissions to hospital could have been prevented if patients' symptoms had been picked up sooner and treatment had started earlier. Standard treatments were not started or escalated in forty two per cent of adult cases and 54% of paediatric cases prior to admission to hospital.

The patients surveyed through the inpatient experience questionnaire had a variety of experiences before being admitted to hospital. Some patients reported being turned away from emergency departments only to be admitted to hospital in a worse condition two weeks later, which resulted in surgery. Other patients commented on healthcare staff not being knowledgeable enough about IBD and specialist medicines in order to be treated effectively.

Dr Ian Arnott, Associate clinical director, UK IBD audit said:

"European populations have a high prevalence of UC, nearly 505 per 100,000 and the UK is a high incident area for IBD generally. The results in these reports do give rise to optimism; there have been steady improvements in many aspects of IBD care and many of the easy gains have already been realised. This is attributable to the hard work, dedication and persistence of the clinical teams across the country. However, important aspects of care remain below desirable levels and missing opportunities to begin or escalate treatment for patients is a cause for concern."

Dr Richard Russell, Consultant Paediatric Gastroenterologist and clinical lead, paediatric report said:

"Children's services looking after patients with UC have improved the care they provide in this round of the audit. This is particularly encouraging because more hospitals participated, alongside specialist services, in this round compared with previous rounds. An interesting finding was that 75% of adolescent patients with UC, who were treated by children's services, rated their overall care as 'excellent', compared with 25% of adolescent patients treated by adult services. This provides important information when planning future services for adolescents with IBD."

A medication that prevens blood from clotting, or which reduces the likelihood of the blood to clot. Full medical glossary
The basic unit of all living organisms. Full medical glossary
Blood that has coagulated, that is, has moved from a liquid to a solid state. Full medical glossary
A condition that is linked to, or is a consequence of, another disease or procedure. Full medical glossary
The basic unit of genetic material carried on chromosomes. Full medical glossary
An abbreviation for inflammatory bowel disease, a group of inflammatory conditions of the intestine. The two major forms are Crohn’s disease and ulcerative colitis. Full medical glossary
An element present in haemoglobin in the red cells. Full medical glossary
A condition resulting in brittle bones due to loss of bony tissue. Full medical glossary
A way to identify people who may have a certain condition, among a group of people who may or may not seem to Full medical glossary
Compounds with a common basic structure, which occur naturally in the body. The term may also refer to man-made drugs administered because they act like hormones. Full medical glossary