Acromegaly is thought to affect approximately 2,000 to 2,500 people in Great Britain, although data suggest the numbers may be higher. Men and women are affected equally. Although it can affect people at any age, most people with acromegaly are between 30 and 50 years of age when they are diagnosed.
A new booklet explains many of the frequently asked questions about acromegaly and includes a section on self-help and support. It also contains a DVD featuring Professor Ashley Grossman, Professor of Neuroendocrinology, Barts and The London School of Medicine and NHS Trust, together with people who have acromegaly discussing the symptoms of the condition and the various treatments ranging from surgery, radiotherapy to medical management.
Commenting on the availability of the resource, Professor Grossman said; “Very often people who are newly-diagnosed with acromegaly have never heard of the condition. This excellent resource has been produced to help these people and their families to understand and learn more about acromegaly, its diagnosis and the treatment and care available”.
What is Acromegaly?
Acromegaly is a rare condition but is associated with an increased morbidity and a reduced life expectancy with at least a two-fold increase in mortality. It is caused in almost all cases by the prolonged, excess release of growth hormone (GH) from the pituitary gland. This excess release of GH promotes the growth of bone and soft tissues, as well as stimulating metabolic changes that can result in other conditions such as diabetes. The main aim of treatment is to reduce GH and IGF-1 levels to within the normal range and this will improve the symptoms, reverse the physical signs of acromegaly and revert the mortality risk to that of the general population.